136 episodes

Made Visible is a podcast that gives a voice to people with invisible illnesses. This podcast aims to change the conversation around invisible illnesses, helping those who experience them —whether as patients, caregivers, or friends or family members — feel more seen and heard.

Made Visible Harper Spero

    • Health & Fitness
    • 4.9 • 104 Ratings

Made Visible is a podcast that gives a voice to people with invisible illnesses. This podcast aims to change the conversation around invisible illnesses, helping those who experience them —whether as patients, caregivers, or friends or family members — feel more seen and heard.

    128. The Quiet Epidemic with Special Guest, Ally Hilfiger

    128. The Quiet Epidemic with Special Guest, Ally Hilfiger

    I moderated a panel discussion at ReelAbilities Film Festival on The Quiet Epidemic, an eye-opening film about Lyme disease that highlights the emotional toll of patients’ journeys with the illness and the scientific facts of the disease. 
    During the panel I spoke with the film’s Emmy-winning producer Chris Hegedus, who helped the directors bring this topic to light, 19-year-old Julia Bruzzese, a patient with Lyme disease featured in the film who bravely shared her story because she knew it could help other patients, and Julia’s dad, Enrico Bruzzese, who has been her caregiver and biggest supporter.
    This episode also includes my recent conversation with past guest and the film’s executive producer, Ally Hilfiger, who talks about her own Lyme story and how important it was for the film to include both real, digestible science and a patient’s story for viewers to connect with.
    The Quiet Epidemic reminds us how important it is to educate about a devastating tick-borne disease like Lyme, which is growing more and more common, yet still so difficult to test for and treat.
    For more information about The Quiet Epidemic and ReelAbilities, visit our website at madevisiblestories.com/podcast
    Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

    This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

    Join the conversation and connect with us online!
    Website: madevisiblestories.com
    Facebook: madevisiblestories
    Instagram: @madevisiblestories
    LinkedIn: madevisible

    • 33 min
    127. Ilana Jacqueline, Fighting the War Against Medical Gaslighting

    127. Ilana Jacqueline, Fighting the War Against Medical Gaslighting

    Author and patient advocate Ilana Jacqueline experienced medical gaslighting from a young age. At age 19 she was diagnosed with Hypogammaglobulinemia, a rare immunodeficiency. 
    While navigating young adulthood with an invisible illness, Ilana also faced lots of medical gaslighting, encountering doctors who shamed her out of seeking care.
    Ilana has devoted her career to patient advocacy. Through her work, as well as public speaking, social media, and writing books (Surviving and Thriving with an Invisible Chronic Illness, and the upcoming Medical Gaslighting: A Guide to Help You Recognize It, Prevent It, and Fight For Your Life) Ilana helps patients survive and thrive with chronic illness, and spot and combat deadly medical gaslighting. If you have experienced medical gaslighting, you’re not alone, and Ilana is in your corner.
     
    For more information about Ilana Jacqueline, visit our website at madevisiblestories.com/podcast
    Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

    This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

    Join the conversation and connect with us online!
    Website: madevisiblestories.com
    Facebook: madevisiblestories
    Instagram: @madevisiblestories
    LinkedIn: madevisible

    • 32 min
    126. Melissa Coulier, Finding a Holistic Approach to Lupus and Life

    126. Melissa Coulier, Finding a Holistic Approach to Lupus and Life

    Melissa is a functional fitness instructor, photographer, and Lupus warrior. After living her whole life in pain, Melissa was finally diagnosed with Lupus in 2006. She began a variety of treatments that helped combat her symptoms, but the physical and mental toll of pain and treatment left Melissa in a place of exhaustion, depression and self-pity.
    A few years later, Melissa shifted gears and adopted an approach to managing her pain that included nutrition and lifestyle changes, as well as medical observation when needed. Melissa also shifted her mindset, creating obtainable goals, avoiding all-or-none thinking, and listening to her body.
    Melissa has drawn from her transformation to build a career in holistic nutrition and wellness, helping her clients embrace their individuality and be in charge of their own stories.
    For more information about Melissa Coulier, visit our website at madevisiblestories.com/podcast
    Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.
    This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

    Join the conversation and connect with us online!
    Website: madevisiblestories.com
    Facebook: madevisiblestories
    Instagram: @madevisiblestories
    LinkedIn: madevisible

    • 36 min
    125. Akiva Zablocki, Helping Families with Hyper IgM Find Community and Care

    125. Akiva Zablocki, Helping Families with Hyper IgM Find Community and Care

    Akiva Zablocki is a former healthcare consultant and the founder of the Hyper IgM foundation. When Akiva’s son Idan was just eight months old, he was diagnosed with Hyper IgM, an incredibly rare genetic mutation that severely compromises the immune system. After three years of diligent research and advocacy, Akiva and his wife were able to obtain a life-saving bone marrow transplant for Idan.
    Through this experience, Akiva connected with other Hyper IgM patients and their families all around the world, as well as many doctors and immunologists working to help those patients. This growing community led Akiva to found the Hyper IgM Foundation, which has become a much-needed way for patients and families to connect and share resources that were previously so difficult to find for such a rare illness. Akiva continues to work tirelessly to support his fellow Hyper IgM families and help them feel less alone.
    For more information about Akiva Zablocki and his family’s journey, visit our website at madevisiblestories.com/podcast
    Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.
    Join the conversation and connect with us online!
    Website: madevisiblestories.com
    Facebook: madevisiblestories
    Instagram: @madevisiblestories
    LinkedIn: madevisible

    • 38 min
    124. Melissa Aives and Danielle Scaramellino, Navigating Invisible Illness With My Best Friends

    124. Melissa Aives and Danielle Scaramellino, Navigating Invisible Illness With My Best Friends

    Join me for a very special episode where I sit down with my best friends, Melissa Aives and Danielle Scaramellino, as we reflect on a life-changing moment eleven years ago when I underwent a life-threatening surgery, introducing my friends to a world of uncertainty about my health. 
    Despite our close bond, they had never witnessed this side of me, leading to an adjustment and redefinition of our friendship. Discover the power of vulnerability, the importance of asking for support, and the lessons we've learned about adapting, prioritizing health, and building a strong support system. This heartfelt episode is a testament to the enduring strength of true friendship and the growth that comes from understanding and compassion.
    For more information about Melissa Aives and Danielle Scaramellino visit our website at madevisiblestories.com/podcast
    Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.
    This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!
    Join the conversation and connect with us online:
    Website: madevisiblestories.com
    Facebook: madevisiblestories
    Instagram: @madevisiblestories
    LinkedIn: madevisible

    • 41 min
    123. Jamie Nicole, Creating Support for the BIPOC Community Living with Autoimmune Diseases

    123. Jamie Nicole, Creating Support for the BIPOC Community Living with Autoimmune Diseases

    Jamie Nicole is a highly regarded certified health coach dedicated to helping individuals achieve optimal health through complementary medicine and holistic health lifestyle changes. Her passion for health and wellness was sparked when she witnessed the transformative power of holistic health in her own life. 
    After being diagnosed with Hashimoto's Thyroiditis and later fighting for a narcolepsy diagnosis, Jamie became aware of the lack of representation and access to support for BIPOC individuals with autoimmune conditions. Determined to make a difference, she started engaging in conversations and leading the way for BIPOC individuals suffering from debilitating symptoms. Her story offers hope, understanding, and inspiration to anyone facing similar health challenges while shedding light on the experiences and limitations that many BIPOC individuals encounter on their healing journeys.
    For more information about Jamie Nicole visit our website at madevisiblestories.com/podcast
    Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.
    This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!
    Join the conversation and connect with us online!
    Website: madevisiblestories.com
    Facebook: madevisiblestories
    Instagram: @madevisiblestories
    LinkedIn: madevisible

    • 54 min

Customer Reviews

4.9 out of 5
104 Ratings

104 Ratings

misbruno ,

A sense of community

This is such a welcoming podcast for individuals like myself with chronic illness and often times feel invisible. It’s comforting to hear other people’s stories and openness around all the triumphs and tribulations as well. So glad I found this podcast.

Amymac80 ,

Saving Grace!

This podcast has been SO freeing to me & to all those with whom I’ve shared. WE ARE NOT ALONE! Thank you, Harper, for busting autoimmune issues & no diagnosis issues wide open! We are not alone.

tlvny ,

Incredibly important podcast

Harper’s podcast is truly incredible. Thank you, Harper, for bringing critically needed attention to invisible illnesses. You are helping so so so many people. Thank you.

Top Podcasts In Health & Fitness

Huberman Lab
Scicomm Media
ZOE Science & Nutrition
ZOE
The School of Greatness
Lewis Howes
On Purpose with Jay Shetty
iHeartPodcasts
Passion Struck with John R. Miles
John R. Miles
Ten Percent Happier with Dan Harris
Ten Percent Happier

You Might Also Like

The IDF Podcast
Immune Deficiency Foundation
The Medbullets Step 2 & 3 Podcast
Medbullets
Phoenix Helix: Autoimmune Resilience
Eileen Laird
The Cure for Chronic Pain with Nicole Sachs, LCSW
Nicole Sachs, LCSW
The Zero to Finals Medical Revision Podcast
Thomas Watchman
The Orthobullets Podcast
Orthobullets